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AXIN2 germline pathogenic variants cause a Lynch-like attenuated polyposis + oligodontia...

Deterministic view of the source YAML entity. Clinical authority remains with the cited source IDs and reviewer sign-off state.

IDBMA-AXIN2-GERMLINE-CRC-OLIGODONTIA
TypeActionability
Statusreviewed 2026-05-18 | pending_clinical_signoff | actionability review required
DiseasesDIS-CRC
SourcesSRC-NCCN-GENETIC-FAMILIAL-CRC-2025

Actionability Facts

BiomarkerBIO-AXIN2-GERMLINE
VariantAXIN2 germline pathogenic (oligodontia–colorectal cancer syndrome)
DiseaseDIS-CRC
ESCAT tierIIA
Recommended combinationscolonoscopy q1-2y starting age 25 (or 10y before earliest family CRC), polypectomy of all adenomas, consider EGD q3-5y from age 40 (mixed evidence — duodenal adenomas reported but rarer than FAP), dental record review at intake — oligodontia + family CRC = AXIN2 workup, cascade testing to first-degree relatives
Evidence summaryAXIN2 germline pathogenic variants cause a Lynch-like attenuated polyposis + oligodontia syndrome (Lammi et al. 2004) — characterized by congenital absence of multiple permanent teeth (oligodontia, often >6 teeth), early- onset adenomas, attenuated polyposis (typically <100 adenomas), and elevated colorectal cancer risk. AXIN2 is a WNT-pathway tumor suppressor; loss stabilizes β-catenin. Confirmed-carrier surveillance protocol follows attenuated FAP / Lynch-like template: colonoscopy q1-2y starting age 25 (or 10y before earliest family CRC), with polypectomy of all detected adenomas; if adenoma burden grows beyond endoscopic management, surgical consultation. Cascade testing to first-degree relatives. Oligodontia is a useful clinical flag — dental record review may identify undiagnosed carriers. ESCAT IIA.

Notes

STUB — Wave A+B germline expansion. Linked Indication: IND-LYNCH-CARRIER- SURVEILLANCE used as closest-fit surveillance template (Lynch-like cadence, no AXIN2-specific Indication exists yet). Two-Clinical-Co-Lead signoff queued. AXIN2 syndrome is rare (~25 families reported) — penetrance + cancer spectrum estimates remain provisional; treat surveillance as attenuated-FAP / Lynch-overlap pragmatic protocol pending more data.

Used By

No reverse references found in the YAML corpus.